Wednesday 1st September 2021 IBE Day at the 34th International Epilepsy Congress
Three (3) two-hour virtual sessions Time: 07:00 EST, 13:00 CET/CAT, 16:30 IST, 19:00 CST, 21:00 AEST If you are unsure about the start time for where you live, contact us at annlittle [at] ibe-epilepsy [dot] org for help.
PROGRAMME 1. Making Epilepsy a National Health Priority - intersectoral collaboration Chairs: Mary Secco, IBE Secretary General and Action Amos, IBE Vice President Africa Topics and speakers: • 10-year intersectoral global action plan on epilepsy and other neurological disorders (IGAP) Tarun Dua, WHO Brain Health Unit • Improving care for children with neurological disorders in resource poor settings Jo Wilmshurst President International Childhood Neurology Association • Improving access to essential medicines Gaby • Putting epilepsy on social policy and development agendas John O'Toole, Division for Inclusive Development, UN Dept of Economic & Social Affairs • Leveraging the IGAP to improve care for people with epilepsy Alla Guekht, Chair ILAE Global Advocacy Council • Working with donors Gardiner Lapham, Trustee BAND Foundation • Epilepsy Advocates Toolkit Karen Robinson, Epilepsy South Africa • Global health in epilepsy database Karen Parko, ILAE North America
2. Empowering Youth to Raise their Voices Chairs: Lorraine Lally (Ireland) and Scarlett Paige (Australia), co-chairs of the IBE Youth Team Topics and speakers: • Epilepsy & Pregnancy: launching IBE's new toolkit Lorraine Lally and Gus Baker, Chair Epilepsy & Pregnancy Campaign and Secretary General-elect • Meet the International Golden Light Award Winners 2021 Presentation of 19 awardees • Hear my Story International Golden Lights, from IBE's seven regions, share their personal stories: • African region: tbc • Eastern Mediterranean: Mohsen Fariborzi (Iran) • Europe: Lynna Held (Germany) • Latin America: tbc • North America: Cassidy Megan (Canada) • South East Asia: Vinay Jani (India) • Western Pacific: Meng-Leo Chou (Taiwan China) • Introduction to the IBE Global Youth Team Lorraine Lally and Scarlett Paige • Questions and Answers session
3. Psychologic treatment and self-management of epilepsy Chair: Gus Baker (UK) Topics and speakers: • The comorbidities of epilepsy: a review Gus Baker (Chair, IBE Research Team and Secretary-General-elect) • The psychological management of epilepsy: The Turkish experience Nuran Aydemir (Turkey), Co-chair IBE Research Team • Self-management programmes in children: The Scottish experience Liam Dorris (Scotland) • Psychological treatment of epilepsy: The Mauritian experience Devishada Dassyne (Mauritius) • Self-management programmes: The US Experience Rosemary Kobau (USA)